Dun-ta-dun-dun-DONE

Sierra isn’t having seizures, lets take her off of all seizure medications. Now we are having seizure activity, bathroom accidents, and everything else that goes with SEIZURES. A supposed Epilepsy specialist is the one who said “Sierra’s not having seizures. I don’t think she has ever had seizures.” Lady Jane, I am not sure what you are talking about since I have been around since the beginning and we just met you. Makes me mad when someone acts like a know-it-all and then they end up being 1000 times wrong. We have to go back for another 72 hour EEG in November because of all of her side effects. It hurts my heart when she gets sooo upset about her accidents. She is 8 years old and is back to wearing pull-ups at night and has to have at least 2 back up sets of clothes at school.

Did I mention we enrolled her back into public school? If she was still being home-schooled, it wouldn’t be so bad (maybe). But she was so embarrassed that she would sit in wet pants instead of saying something. I stopped that fast! After speaking with the teacher and school psychologist, she now has a way to let the teacher know without the whole class being informed. It has done well for a few weeks, but a little boy mentioned it this past week and now she is embarrassed again. Luckily, this week is fall break and we can start fresh next week.

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About Sierra's Story - Epilepsy through the years

My daughter, Sierra, was diagnosed at age 4 with Primary Generalized Epilepsy - absence seizures. Since her diagnosis she has developed tonic clonic and drop seizures. She has also been diagnosed with ADHD, ODD, and Sensory Integration and Processing Disorder. This is Sierra's story.

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